Nolan 9 Months

Goodness, where to begin? I have told myself I was going to write a new blog update at least twice a week since January. We have had a pretty eventful last few months. As many of you have seen, Nolan got glasses (which are super cute), and tomorrow he will be undergoing a surgery on his eyes to keep them from crossing. This seems to be a pretty common procedure with CDG kids. We are nervous, of course, but we are excited that our sweet boy will be able to see more clearly. Surgery is scheduled for 7:30 in the morning and we hope to be home in the early afternoon.

In all other areas Nolan is doing great. He is still behind developmentally, but is doing well in therapy and showing signs of improvement each week. Right now he gets physical therapy and occupational therapy once a week, speech therapy and skills therapy twice a month. Currently we are working most on sitting up using a side sit method where he uses his arms to help hold him up. He can currently stay up for about 10 seconds consistently. We also spend quite a bit of time working on rolling over. He can easily roll from back to belly, but hasn’t decided he wants to try to roll back. He LOVES tummy time and will actually push against you when you try and help him roll to his back. So I think it may be a while before he has mastered this. His head control is getting so much better; he still struggles some when he is tired, especially if he is working on sitting up at the same time.

We are happy that springtime is here, kind of, what is with this crazy weather?? However, we have been able to get out and about a little more. Nolan has been able to attend a track meet, softball game, and a couple of baseball games. We still have to be cautious with people touching him, and our pediatrician recently warned us that though flu season is over, respiratory virus season is still going strong. He advised that we continue to avoid crowds in enclosed spaces. Open air and hand sanitizer will continue to be our best friends.

That’s really all I have for you. Nolan is maybe the happiest baby ever. He loves kisses, snuggling, being tickled, bath time, laughing, talking (he will say D’s, M’s, and B’s), he also likes to growl and screech. His newest thing is spitting and making tooting noises, typical boy. He loves peek a boo, singing, reading books, chewing on EVERYTHING, and being outside. We love to sit on our back porch and watch the birds.

I am sorry it has taken me so long to write this, I will TRY to do better in the future. As always, we appreciate the continued love and support we receive and would appreciate a few extra prayers for Nolan and his doctors tomorrow.